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Muscular Dystrophy UK

Muscular Dystrophy UK

Non-profit or charity


Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to fight muscle-wasting conditions. Founded in 1959, we have been leading the fight against ...

WellbeingCommunity & family
Fundraising Group co-ordinator

Fundraising Group co-ordinator

Organisation role · 8–30 hrs/Week
From home
WellbeingCommunity & family
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Muscular Dystrophy UK
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The Fundraising Group Coordinator will work with the Regional Development team to help us get new fundraising groups started across Somerset

Detailed description

We are looking to build Fundraising Groups across the UK, these groups who will consist of between 3-8 people will help us extend our reach by fundraising, attending talks and presentations, creating local networks and building awareness of the charity and how we can help people living with a muscle wasting condition all within their community 

The role of the FG Coordinator is to work with the Regional Development team to help us get this project off the ground, you will often have catch ups with the team on a one to one basis and support with admin tasks to help us gather and collate information needed to ask people to join a group.

Along with the other staff and volunteers you'll be a core part of the local MDUK community, meeting new people and making a difference to those living with a muscle wasting condition.

As the Fundraising Group Coordinator you would have the opportunity to: 

  • Meet new people, make new friends and work as part of our skilled and friendly fundraising team
  • Do something meaningful for people affected by a muscle wasting condition
  • Learn and develop valuable leadership, teamwork, fundraising, organizational skills and communication and people skills
  • Make a valuable contribution to the success of the project
  • Enjoy a flexible volunteering opportunity that you can fit around your lifestyle
  • To take part in relevant training by MDUK




What you’ll be doing:

  • Researching communities identified by the Regional Development manager that look good to start a group, helping us to get a better understanding of the area by
  • Looking at fundraising that already happened in the community
  • What community groups are active such as Rotary, WI, church, young farmers etc.
  • What local opportunities are there such as car shows, fetes, festivals etc.
  • Collating your research and compiling this for each group that we set up
  • Work with your Regional Development managers and the Senior Regional Development manager to discuss findings and next steps.
  • Make calls/emails to prospective group members to invite them to the initial meeting to find out more about the group opportunities
  • keeping up to date about the news and developments of MDUK
  • be an enthusiastic MDUK ambassador for the project

What you’ll bring

  • Have organisational, communication and IT skills so you can work effectively with a wide range of people
  • A welcoming, friendly manner
  • Ability to make balanced decisions taking into account multiple views in order to meet the needs of local people with a muscle wasting condition
  • A positive attitude to make things happen in your local community
  • Be able to volunteer flexible hours
  • Be able to volunteer independently and as part of a team

Commitment to volunteers                                   

What we expect from you:  

  • Enthusiasm and commitment to supporting the work of MDUK
  • To maintain and uphold the reputation and good name of the charity
  • To listen to, and work co-operatively with paid members of staff and other volunteers – treating all with courtesy and respect
  • To take reasonable care of your own health and safety and that of others who may be affected by their acts or omissions
  • To support the charity’s equal opportunities and diversity policy – helping to promote this to all our supporters
  • To provide us with feedback on how we can improve your volunteering experience with the charity
  • To inform us if your commitment to us, for any reason, can no longer continue

What you can expect from us: 

Volunteers starting a new role will complete an induction to help you settle into the role providing you with the knowledge needed to help you succeed, this includes

  • ·      Vital information that you need to know about the charity, the support available to you and other useful resources.
  • ·      It’s really important that people affected by a muscle wasting condition can trust us with their personal information so as a volunteer you might be handling personal or sensitive data and will complete our GDPR training so you can confidently carry out your role.
  • Your local Regional Development Manager will also provide guidance and inform you of any relevant training throughout your role
  • Regular email updates on the charity’s work
  • Contact with other volunteers working with MDUK
  • You can claim back pre-agreed reasonable expenses as per the MDUK expenses policy
  • Insurance cover, while volunteering, under MDUK’s public liability insurance, as per the insurance policy
  • A formal, written procedure for resolving difficulties; if you have a complaint it will be dealt with promptly and fairly.

You may also be asked to undertake relevant learning and development opportunities and be invited to attend events and meetings

Other information  


We ask volunteers to provide details of a referee for some of our volunteer roles. This is to help us confirm the identity of our volunteers and to build up a better understanding of them


Volunteer expenses

We believe that no volunteer should find themselves out of pocket because of expenses incurred when carrying out their volunteering activities on our behalf. As a volunteer you can claim out-of-pocket expenses in line with MDUK’s Volunteer Expenses Policy

What we will provide to volunteers

💸 Reimbursement of costs🤝 Extra support
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About Muscular Dystrophy UK

Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to fight muscle-wasting conditions. Founded in 1959, we have been leading the fight against muscle-wasting conditions since then.
We bring together more than 60 rare and very rare progressive muscle-weakening and wasting conditions, affecting around 70,000 children and adults in the UK.
We support high quality research to find effective treatments and cures and won’t stop until we have found them for all muscle-wasting conditions.
We are leading the drive to get faster access to emerging treatment for families in the UK.
We ensure everyone has the specialist NHS care and support they need – the right help at the right time, wherever they live.
We provide a range of services and resources to help people live as independently as possible.